Sunday, December 27, 2009

Merry Christmas!

"For to us a child is born, to us a son is given; and the government shall be upon his shoulder, and his name shall be called Wonderful Counselor, Mighty God, Everlasting Father, Prince of Peace." (Isa. 9:6)

We are so thankful to celebrate the birth of our Lord and Saviour! We really try to remember the reason why we celebrate Christmas...Jesus Christ. We are trying to start family traditions and deciding how we are going to handle presents, Santa (or no Santa), and is a lot to discuss and decide. At the end of it all, we just want Hugh to know the true meaning of Christmas - we pray and hope we will model this to him. Hopefully, he doesn't see my tantrums when Santa doesn't bring me what I asked for...kidding.

So, one tradition we are starting is one present for each child (right now, just Hugh) and eventually, we'll do small stockings for our children. So, we went all McDonald's over in the Saylor Crib and got Hugh a play tent/tunnel with lots of balls...yep, think play area at McDonald' is awesome (I must have been REALLY tired when I ordered this...kidding!). Hugh loves it and it can fit into really compact bags (except for the super fun balls)...just wish I could figure out how to get them to be compact. I got a bike and bike trailer...they are awesome. Just wish I could ride a bike like I was ten again. He cleaned up at his Grandparent's and got lots of wonderful gifts. He got some awesome flashcards - they have the word in five different languages...Jake and I will be fluent in Spanish, French, and German before we know it...well, at least we'll know all the colors and farm animals. We enjoyed a wonderful Christmas Eve and Christmas with lots of family...we missed our family who do not reside in Arizona...and this was the first Christmas in thirty years that I didn't see my parents! They had a wonderful time in Alaska and we were glad they were able to be with my brother and his family. So, we'll have another round of Christmas with my parents! We are so blessed!

Hugh is doing so much better with his walking...he really started to pick up on Christmas Eve. We think he was trying to show off for his Aunt Melissa...guess he has a thing for blonds. So, maybe we will have a walker soon. Ah, we love this sweet baby! So, we debated on going to Zoo Lights this year and at the last minute, we decided against it...and went to Glendale Glitters. It was the better decision...for sure. All Hugh wanted to do was crawl around and be crazy...glad we saved ourselves the money...better to be crazy for free. Maybe we'll venture to Zoo Lights next year...we'll see...still betting our son will be crazy...for sure.

Hope everyone had a wonderful Christmas!

Sunday, December 20, 2009

We Like to Thick-it, Thick-it!

It has been a great week for Hugh and us all. It started out with making gingerbread houses at his aunt's house, and I don't like to brag about my son, but his house was awesome...I think he may be gifted. He learned that you could actually eat off of it...even better. However, unlike his mother - this child will eat two pieces of candy and it will be enough...what happened to him? He has a favorite Christmas toy...a Snoopy snow globe...loves it. He is still taking steps...on his terms and giving up crawling is WAY in the future. However, he will walk for Gummy Vites. He has learned to open more cabinets and the kitchen drawers...ah, yes...we are so proud. He has also learned that if the cleaners are placed in the perfect spot in the cabinet, he can still reach them and pull them out (with the locks) with his skinny arms...darned skinny arms. So, now he just opens his toy cabinets and dumps out ALL of his is so awesome and we LOVE it! He loves to stand up in the grocery cart and it is always a wonderful feeling to look over and see your fourteen month-old standing up in the cart...I am sure the people watching think I am an AWESOME mom! He is starting to think that he only needs one nap a day...too bad for him that we run a dictatorship over here and his vote doesn't count. He continues to crack us up with his playful spirit and silly personality. He is very sweet except with people at the grocery store...he gives them a very serious scowl. We love this baby and we are so blessed!

We met with Dr. P (GI) this past week. We decided that Hugh will remain on thickeners until he is two. We do not believe the radiation is good for him, so we are delaying another MBS test until he is two. I am sure the test at two will go splendidly well since he was SO cooperative (yeah right) for this last test...I told Jake the next test is his. Dr. P started mentioning maybe running some other tests (like scoping him or a head CT), but we decided to wait at this time. We decided that if he has not outgrown this by two (which would be unheard of per Dr. P), then we would explore running other tests to figure out if something else was wrong. Dr. P mentioned that Hugh could have severe food allergies that are only presenting their problems on the inside rather than showing any outward signs...scoping him would show this. We have seen God's incredible faithfulness over the past year and we know we will continue to see His faithfulness. We are thankful we serve a God who is in control because we know how easily we lose control...we wouldn't want anything to be in our hands. We would continue to appreciate your prayers.

So, I fell victim to another one of my "nevers" know the statements, "I will this...or do that." So, I got an overnight bag (aka big purse)...I decided that sometimes you just want to carry one bag with all the "stuff" in it. For a moment I saw my future and I got scared...I know once I go big, I am not going back...and that is very sad. I see my mom with the forty pound purse...and me saying, "Really, you need to carry your check book (who takes checks?!?), your entertainment book, eighteen pens, six packs of gum, candy (this is a good thing), a water bottle, glasses, contact solution, tapes, used kleenex (she swears they are just crumpled), and the list goes on." I cannot become my mom with the back breaking purse...I just can't do it (see, I didn't say never). So, this never just gets added to the list of other nevers...pointy heels (yep, still wear them...they will never go out of style in my book), ballet style shoes, big sunglasses, headbands,... So, I need to stop using the word "never"...haven't I learned my lesson yet?!?

Hope everyone is doing well and enjoying the Christmas season! God is good!

Sunday, December 13, 2009

Steps...(as in Multiple)

Yep, he has taken multiple steps. He is so cute when he does...all shaky (kind of like how you walk after someone spins you round and round)...we are so proud. And then I got the Facebook curse (really only thought there was a blog curse), and he doesn't really want to do his "steps" any longer. Oh well, we know he'll give up the speed crawling one day...however, that would mean he would have to give up his semi-pro career in hand soccer and that would be a bummer. We had his "big" test at PCH this past Monday and unfortunately, there wasn't a lot of change. The radiologist actually stopped the test because he saw him aspirate (the liquid going down the airway and not coming back out). Hugh didn't seem to notice. God has protected this child from any respiratory problems, which we are very thankful for. We are back to 100% thickeners with everything now because of the true aspiration. So, we'll meet with GI and determine the next step. We don't really think we want to continue the tests because of the radiation he is exposed to, but we'll see. Thanks to you all for your prayers...we really appreciate them.

So, besides the steps (as in multiple)...what else is new with Hugh? Well, he loves the Christmas tree, which is being protected from Hugh (finally found a good use for his super fun play yard). He likes to try and pull ornaments off the tree or throw things into his super fun play yard. He loves dogs...and Jake almost talked to me into getting one...cutest Bullmastiff...loved her...oh, and then I woke up and realized that I don't EVER want a dog (don't worry, it was just a brief lapse in my better happens from time to time...oh, like today when I put my rings on top of the car because I didn't want them to get sticky when I put gel in Hugh's hair (yep, so vain...he practically begged me for the gel)...and then when we were a mile from the house, I noticed I wasn't wearing my rings...shoot. God is gracious to me and my rings were in the exact same spot on the car roof.). He has this new fake laugh he likes to show off, it is very funny. He has finally learned how to give hugs...or a Hubey hug, which is him laying his head down on you or anything...his puppy, his bike, his blanket, the couch, the floor, whatever. Honestly, I love it...melts my heart!

We are so blessed this Christmas season!

Sunday, December 6, 2009

Crazy Fun

So, what is new with Hugh? Well, he is finally eating again now that the never ending cold has finally ended. We have his big test at PCH tomorrow...hoping that all his muscles in his throat are fully developed. However, they have told us that if there is no change - it may just be his swallow (and they assume one of us has the same swallow...I guessing he got this wonderful trait from me). So, all the thickening and expensive therapy for nothing...awesome. I guess we'll see tomorrow. He has been standing independently...very impressive. He has taken A step! Several times I might add...not all at the same time, but A step at several different times. I know, I all are SO amazed. Maybe we'll start 2010 with a walker...heavy emphasis on maybe. We continue to see his personality come out more and more...we love it. He continues to mimic a lot of my, I really need to smile more and quit the smirking. We are loving every minute with him...he is so much fun.

We were blessed this past weekend with a sleepover with two of our amazing nephews. This is the third year we have had a nephew/nephews spend the is so fun. The rule is as soon as they are potty trained, they can spend the night. So, Eli says to me (he is very smart), "Logan is potty trained and with your rule, he should be here." I explained to him that his Mom didn't think I was ready to handle four kids and he says, "Yep, you wouldn't be able to handle Logan." Too funny. Logan - you were missed and you are coming next year...I know Jake can handle it. We had lots of fun with games, the Wii, too much sugar, VHS movies, a Christmas party with our small group...lots of fun (and craziness) all around. My favorite line from the weekend - from TJ, "I loved Robin Hood. It was the best movie." He makes me smile - the movie is from the 80s. Of course, I wanted to document the the last minute. So, I bribed the boys for pictures because they kept telling me how much they hate pictures (especially Eli...he kept telling me how much he HATES them, I believe the evidence below contradicts his story).

Oh well, I tried to get some shots...kudos to people who get great shots of their multiple children. Oh, and this is what happens when you give a six-year-old a camera.

Ah, we love these boys. Hugh had a blast...looking forward to lots more in our future...or, I guess until they become "uncool". We wish all of our nieces and nephews lived here for sleepover fun!